CSA/USA
San Diego
Chapter #57

 

The Celiac Support Association, CSA/USA, is a national support organization that provides information and referral services for persons with celiac disease and dermatitis herpetiformis. Their slogan is "Celiacs Helping Celiacs". Note: it was formerly called the Celiac Sprue Association until January 2014.

Our San Diego Chapter of CSA was organized in 1993. It's membership is comprised of both persons officially diagnosed with celiac disease and dermatitis herpetiformis, as well as those who are gluten sensitive. We all must follow the gluten-free diet and are able to support and educate each other with this often tricky diet.

Please contact one of the New Member Contacts below with any questions you may have about this support group or it's events. Membership includes a bi-monthly newsletter that keeps you informed of our group activities, relevant news items, GF recipes, and more. The master calendar includes these events as well as other events occurring in San Diego County.

Saturday, May 17 Meeting
When:
Saturday, May 17 from 2 - 4 pm
Where: Rady Children's Hospital Medical Bldg. (below)

Please also join us for delicious GF snacks, ideas, announcements and more! More information to follow.

Support Group Meetings Members in Action Annual Dues
Next Support Group Meeting

Past Meeting Notes
and Photos

Membership Form
Community Involvement

Newsletter

Hildegard's Story
My Golden Gluten Free Anniversary
Our YouTube Video,
The Faces of Celiac Disease

 

Board Planning Meetings
The History of Chapter #57
A Small Beginning
by Helen Foreman
  Dining out Events

Support Group Meetings

2014 Meetings

When
Where
What
Saturday January 25, 2- 4 pm Rady Children's Hospital Medical Office Bldg. (see below) Dr. Sheila Crowe & Dr. Peter Ernst, speakers (see above)
Sunday March 23 Time TBD Rady Children's Hospital Medical Office Bldg. (see below) Terry Meihaus from La Farfalla Cafe will do a cooking demonstration.
Saturday May 17 2 - 4 pm Rady Children's Hospital Medical Office Bldg. (see below)  
Sunday July 27 noon- 2pm Village Park Rec #4, Encinitas Annual picnic/barbecue
Saturday Sept. 27, 2 - 4 pm Rady Children's Hospital Medical Office Bldg. (see below)  
Saturday Nov. 1, noon - 3 pm Rady Children's Hospital Medical Office Bldg. (see below) Annual potluck

Where: The Rady Children's Medical Office Building is at 3030 Children's Way, San Diego, 92123. The meeting room is # 113, which is on the ground floor at the south end of the building in the back. Enter using the door marked "3". The parking structure directly across the street has free parking on Saturdays. For those dropping things off, there is a driveway at the left of the building with a sign "Ambulance Entrance" that has a turn-about right in front of the back entrance to the meeting room.

Directions may be obtained by going to the Rady Children's Hospital website at www.chsd.org and click on "Maps and Directions". The "Printable Campus Map" shows the building for our meeting as "Medical Offices" and is bright yellow.

When other locations are specified, addresses and directions will be given with the announcement of the meeting.

Who comes: Anyone interested in information and support for celiac disease, dermatitis herpetiformis, or gluten sensitivity. There are newly diagnosed as well as long-term diagnosed persons at every meeting. Newcomers are especially welcome and encouraged to come.

Meeting formats: The meetings may include guest speakers, discussion groups, potlucks, and more.

GF snacks and beverages: GF snacks are provided by members for everyone to enjoy at every meeting. If you would like to bring a GF snack, please bring copies of the recipe to share. If you bring a commercial product, please bring the original package. This enables all to eat safely, no matter what additional food sensitivities individuals may have.

Beverages including coffee and soda and/or water are provided by the support group.

Library: We have a "library" filled with gluten-free cookbooks, DVD's, and more. Our librarian, Victoria Keyser, will be happy to assist you with checking out any resources. You may "borrow" these resources until our next support group meeting, which is usually 2 months, and then bring them back. If you cannot make the next support meeting, then please contact Victoria to make arrangements to return the resources via mail. victoriakeyser@sbcglobal.net.

In addition, the revised and expanded edition of Gluten-Free Diet by Shelley Case is for sale at our meetings for the bargain price of $10. Shelley is a well known dietician from Canada, and has spoken to our group. It is a very comprehensive resource guide to the gluten-free diet.

Annual Dues: The dues are $15 annually, from January to January. Membership includes a bi-monthly newsletter, occasional pertinent emails, and a New Member Handbook with lots of practical advice. If you are renewing, please send your check to Debbie Toon, 2801 B St. #10, San Diego, CA 92102. If you are a new member, please see the CSA San Diego Membership Form.

Community Involvement Activities

YouTube Video
Our San Diego CSA group "starred" in a YouTube video produced in May, 2010 for Celiac Awareness Month. Titled The Faces of Celiac Disease, in 4 minutes it shows the symptoms, length of time to get diagnosed, and how our members improved on the GF diet. It's now been watched over 12,000 times!

GF Food to Flood Area
Thank you to Carol Salvati for shopping and shipping GF bars, pasta, cake mixes, brownie mixes, foil pans, crackers, polenta, etc. to the leader of a Celiac Chapter in Joplin, Mo, that suffered from the terrible floods.  At our Support Meeting in May 2011, we voted to give Carol a check to buy GF items to ship to Joplin to help their celiacs out.

San Diego Gluten-Free Food Expo
The San Diego CSA Chapter helped sponsor the 2011 Gluten-Free Expo. Our members put in hundreds of hours of volunteer time to help make it an extremely successful event. All money raised was/is earmarked for celiac disease education and awareness projects within the San Diego area. www.sdgfexpo.com

San Diego Gastroenterologist Awareness Project
A flier listing available support for those on the gluten-free diet in the San Diego area was mailed in March 2014. to . The information was mailed to 187 area gastroenterologists, and included support resources in our area, why it is important that patients attend support groups, as well as this website's business card. A summary of the basics of the gluten-free diet was included on the backside of the flier. Our CSA members helped address, stuff, seal and stamp.

Dining Out Events
Our CSA group sponsors dining out events periodically throughout the year all over San Diego. These are open to everyone, and are a great way to casually chat with others on the gluten-free diet.

Help promote your favorite GF-friendly restaurant! These events help promote restaurants doing a great job with gluten-free. If you would like to promote one of your favorite restaurants by organizing an event there, please contact Michele at michelevargas110@gmail.com or 858-485-8868. She will guide you through the siimple process of setting it up. See previous restaurant locations.

Newsletter
Members of the support group receive a bi-monthly newsletter filled with the latest news in the celiac world, GF product and restaurant information, and GF recipes. This can be received either by email or regular mail.

Want to help the group save money on postage and paper? Did you know if you receive your newsletter via snail mail that is the only mail that you receive from our group? If, on the other hand, we have your email address, you would receive your newsletter via email and you would also get our email blasts about special events, dining out reminders, etc. If you want to change the way you receive our newsletters, please email Debbie Toon at toon.debbie@gmail.com

Twitter: We are looking for someone to use our Twitter account to post meetings and other events. Please consider getting involved with this simple volunteer job!

Board Planning Meetings

These are scheduled bi-monthly on the fourth Saturday of the month. They occur in the months that there is not a regular Support Group meeting. If you are a member and would like to attend a board meeting, please contact Jan Pruitt, our group's facilitator.

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Members in Action

There are many people that are involved in making our support group a productive and successful one. The following are some of the jobs being done by volunteers. Volunteering is a great way to get to know other persons committed to eating gluten-free, and it helps our group make a difference. There are usually several positions available. Please join us in taking an active role in the group! Contact Jan Pruitt if you are interested in participating.


jan
Facilitator
Jan Pruitt
jepsquirt@att.net

 

helen
Resource Contact Person
Helen Foreman (760-931-7809)
bhforeman@webtv.net

carol
Resource Coordinator
Carol Salvati
dsalvati1@att.net

sandra
Resource Contact Person
Sandra Milne (858-278-1413)
shipmates2@mindspring.com
Librarian
Vicky Keyser
victoriakeyser@sbcglobal.net

michelle

Membership Coordinator and Dining Out Coordinator
Michele Vargas
michelevargas110@gmail.com

Meeting Supplies and
Meeting Room Set-Up


Volunteer needed for this position.

debbie
Treasurer
Newsletter Editor
Debbie Toon
toon.debbie@gmail.com

roxie
Website
Roxie Johnson
info@glutenfreeinSD.com
Secretary
John Philp
j.philp@cox.net

kagnoff
Medical Advisor
Martin F. Kagnoff, M.D.
Misty Faulkner
Publicity Coordinator
Misty Faulkner
4faulkners@earthlink.net
Sheila Crowe
Medical Advisor
Sheila Crowe, M.D.
Youth Coordinator
Julie Bradley
julie@kickstartwellness.org
Mary Collard
Dietician Advisor
Mary Collard, MS, RD, RCEP
Program Coordinator
Deana Smith
deanna@glutenfree.com
   

 

Hildegard's Story

hildegard2



Hildegard Savage, a treasured charter member of the San Diego CSA Support Group, celebrated her 50th anniversary of celiac disease diagnosis in March, 2010. To help celebrate this event, Hildegard graciously shared her story, My Golden Gluten-Free Anniversary; 50 years on the gluten-free diet. A very special and fascinating story!

 

 

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