Organizations and Research Groups
The following national organizations offer vital information and support dealing with gluten-free living. Their respective websites include information about celiac disease, dermatitis herpetiformis, diagnosis, product information, newsletters, restaurant cards, and much more. Membership in some of the organizations entitles you to their newsletter (see the Publications section in Resources).
|American Celiac Society
Annette Bentley, President
59 Crystal Avenue
West Orange, NJ 07052-3570
Gluten Intolerance Group of North America (GIG)
15110 10th Ave SW, Suite A
Seattle, WA 98166-1820
Celiac Disease Foundation
13251 Ventura Boulevard, Suite 1
Studio City, CA 91604
Orange County Celiacs Support Group,
Barbara Nielsen, Chairman, 949-644-4966
|Raising Our Celiac Kids (R.O.C.K.)
| Celiac Sprue Association (CSA) / USA, Inc.
Omaha, NE 68131-0700
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Center at Columbia University (NYC)
Peter H.R. Green, MD, Director
This center is dedicated to patient care, physician and patient education,
as well as research. The website is an excellent information resource.
Disease Clinic at Mayo Clinic
Joseph Murray, MD, Medical Director
This clinic is located at the Mayo Clinic in Rochester, Minnesota.
for Celiac Disease
Beth Israel Deaconess Medical Center
Harvard Medical School
Celiac Center at Beth Israel Deaconess Medical Center,
This website created by the Center for Celiac Disease is designed for "people with celiac disease who want to read more about nutrition and the gluten-free diet from an introductory to a more advanced level." It would also be appropriate information for those with non-celiac gluten sensitivity on the gluten-free diet. They have a free newsletter that you can sign up for as well. www.celiacnow.org
Center for Celiac Research (CFCR), University of Maryland
Alessio Fasano, MD, Medical Director
CFCR was established in 1996. This mulitdisciplinary team conducts scientific
and clinical research, including the recent
landmark celiac disease prevalence study. The goal of the CFCR is to increase
awareness of celiac disease in order to provide better care, better quality of
life, and more adequate support for the celiac disease community.
The University of Chicago Celiac Disease Center
www.CeliacDisease.net , 773-702-7593
Stefano Guandalini, MD, Medical Director
"Our mission is to raise diagnosis rates for celiac disease and meet the critical needs of people with the condition, through education, research, and advocacy." The website is a great source of information in the Celiac Disease Fact Sheets section.
Celiac Sprue Clinic, Stanford Hospital & Clinics
Gail Pyle, MD
Wm K. Warren Medical Research Center for Celiac Disease
La Jolla Campus of UCSD
Martin F. Kagnoff, MD, Director
The Warren Medical Research Center for Celiac Disease opened January, 2006. It aims to conduct state-of-the-art research in the area of Celiac Disease. In addition, the research center works in conjunction with an Adult and a Pediatric Celiac Clinic, both located in San Diego. These clinics are now seeing patients, and will eventually provide comprehensive medical care to individuals and families affected by Celiac Disease. Call 858-822-1022 to make appointments at either clinic.
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Celiac Disease Alliance (ACDA)
(formerly the American Celiac Task Force)
ACDA's goal is to be a federation of celiac organizations to advance
education and advocate for individuals with celiac disease. The board
of physicians, support groups, and industry representatives. Andrea Levario,
J.D. is currently the Executive Director of ACDA.
Foundation for Celiac Awareness (NFCA)
The NFCA is a nonprofit organization dedicated to finding a cure for Celiac
Disease. It is "afffiliated with the leading researchers in the U.S. who are working toward this goal." It
is a United Way Agency. The organization's website is full of good information
about current CD news, current research, and CD information.
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